Webinar: Virtual Conversations in Support of Rare Disease Day

February 28, 2022

In observance of Rare Disease Day, the Rare Disease Diversity Association hosted a series of virtual conversations consisting of two panels on February 28th featuring discussions surrounding rare disease from the perspective of clinicians, activists, and patients. The first panel, “Knowledge is Power”, featured a conversation with famed brothers Lahmard, Larenz, and Larron Tate on sickle cell and other rare diseases. The second panel “How to Advocate for Your Health as a BIPOC Patient”, focused on how to get access to early detection and treatment options for rare diseases.